Menkes syndrome
Alternative Names
Steely hair disease; Menkes kinky hair syndrome; Kinky hair diseaseTreatment
Treatment usually only helps when started very early in the course of the disease. Injections of copper into a vein or under the skin have been used with mixed results.
Outlook (Prognosis)
Most persons with this condition die within the first few years of life.
Possible Complications
- Seizures
- Death
When to Contact a Medical Professional
Talk to your health care provider if you have a family history of Menkes syndrome and you plan to have children. A baby with this condition will often show symptoms early in infancy.
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